Cork’s mother offered a deaf, mute, blind and autistic woman a care allowance of only 4.50 euros per week

The East Cork mother of a severely disabled adult daughter has been offered a weekly carer’s allowance of €4.50 following an assessment by the state, local Sinn Féin TD Pat Buckley told Dáil this week.

The woman, whom he identified as Margaret, had a partner living in her home but only contributed to the daily bills in lieu of the costs of caring for Margaret’s 36-year-old daughter, who is deaf and mute as well as being registered blind and autistic.

According to MP Buckley, Margaret’s daughter is the only person in Ireland recorded as having Fraser’s syndrome, an extremely rare disease. Margaret wrote to Deputy Buckley recently to explain her position.

“She explains how she does the hardest job in the world to raise her disabled daughter, a very demanding and beautiful task. Her day begins at 5:30 a.m., showering her clothes, brushing her daughter’s hair and tying her shoes.

“Margaret’s daughter is 36 and she has spent those 36 years as her sole caregiver. Margaret fractured her pelvis in 2016 and had to give up work.

“She ended up riding a bike for a year so she could take her daughter on her very important daily routine. In February, Margaret had surgery but had to go out the same day to take care of her daughter.

“If her daughter is in residential care, it will cost the state about 1,000 euros to 1,500 euros per week to take care of her.”

Representative Buckley told his colleagues at Dell that the state offered only 4.50 euros a week after testing Margaret’s finances.

Margaret wrote that she did think she was a good mother but the state made her feel worthless.

“She says it is an insult to herself and others who are giving their lives and freedom to care for their disabled children.”

TD explained that Margaret and her partner or ex-partner “were living separate lives” but it was a means as if they were together.

He said, “That means the poor mother literally has nothing. Her only job is to take care of her daughter. Getting this news from the administration will break your soul.”

“I know a woman personally. I see her anytime, no matter what time of year she has to take her daughter for a walk. It’s one of the simplest things.”

“It feels worthless. She said she didn’t want to come to me and didn’t want to complain, but it was a very small amount.

She tried to explain to the administration that the husband or ex-husband, despite being at the same address, only supports the daily family bills.

“This lady has no chance of making money.

“She is entitled to the caregiver’s allowance, but since she was tested including the income of the spouse, the state decided to give her 4.50 euros.”

TD said the letter Margaret received informing her of the amount of sponsor’s allowance she would receive did not contain any information such as getting an inspector to come to her home for a proper assessment.

“There has to be a mechanism where a person can, first of all, speak to a human being in any department, where he has the opportunity to come before a board or someone to explain his or her real-life story, to prove it, and to demand that he be viewed with sympathy so that he or she can The resident from seeing that he did not realize the situation.

“It happens. My biggest problem is that I brought it up directly with the Minister and I have not received any response – I am very disappointed with that – and I have nowhere to turn to this woman to plead her case for herself and her child.

“That’s why I’m raising it tonight. I don’t expect a magical answer from the Secretary of State tonight, but at least once it’s recorded, we can go back to it and revisit it.”

Malcolm Noonan, Secretary of State for the Department of Housing, Local Government and Heritage, responded to the story told by Representative Buckley and described Margaret’s situation as “extremely difficult”. However, he said that on June 2, a total of 262 million euros was paid out to 121,000 care benefit recipients.

Minister Noonan, who pledged to take the matter up to the responsible minister, said: “I know that these statistics do not benefit the mother mentioned by the deputy.”

Rep. Buckley responded to Minister Noonan and said one way to hope is that the administration has provided a welfare inspector.

“When information comes from management, it sets the deadline for appeal but does not state that the person has chances if his or her circumstances are different. I welcome that. I got more than I expected because I assume I am a realistic person.”

“This woman wanted to stand up because she suspected there were other affected fathers around the country.

“She told me that at her age, she shouldn’t have to worry about it, but €4.50 a week is an absolute insult. I asked how many people this happens to, and she said she wanted to stand up and fight, not only for her child but for other families as well. to be antecedent.

“At least I can call this woman tomorrow and say we can arrange a meeting with the welfare inspector.”